The Brave One

I'll try & update this as best I can given that I haven't been able to get up to Addenbrookes as I've had to work.

Caitlin is now on feeding tube (NG tube) number three, & this one looks line it's in for a while. 60 days to be precise. This is the only way Caitlin is going to get the nutrients that she's lacking by not eating. When Caitlin finally comes home, we'll have to have a feeding pump here where she can have overnight feeds. This is also another way we can administer chemo. The yukky one that Caitlin hates.

Whereas we don't touch the Hickman line, the NG tube will be used every day & unfortunately the NHS can't give us a nurse to live round our house 24/7. Alisha has had training today on daily operations with the NG tube as it'll be us who gives her the feeds & flushes of the tube & she's proven to be a very quick learner. After 60 days they'll replace the tube & we start the process again for another 60 days.

Caitlin's temperature is stabilizing which is a good sign. She's had antibiotics & ambizone again today & seems pretty bright & chirpy. On Saturday, Alisha is coming home & I get to stay up at Addenbrookes with her. She's calling it our Secret Sleepover, so if you could keep it to yourself I'd appreciate it!

XxX