Quarantine 2

Caitlin has had an up and down day today. She was thrilled that Gaz came along to see her and we spent the first few hours playing with her toys and playing games to pass the time as Caitlin had antibiotics. Once they were finished, we were allowed to take her out for a little while. Not too far but anywhere is better than staring at the same four walls.


We didn't go out for long but when we got back Caitlin was tired again and shivering so we tucked her into bed. She wasn't hungry, she didn't want to play, she just wanted to sleep. Gaz put a film on for her and she just lay in bed right up until we left.


There's been talk of taking her Hickman Line out as the infection may lie there, plus it would help regulate her temperature. It would mean going back to cannulas which is something we hadn't even thought of again as the Hickman was put in to help the doctors give chemo and take blood, without having to go through the struggle of needles with her. Caitlin has been really lethargic and not herself today, everyone has noticed it. It's the first time she's been like this since she was first diagnosed which is a blow to us as even though her body is going though hell, Caitlin is always still perky and happy. This always gives us a lift and helps us be strong for her, so we can only hope this passes as quickly as possible.


I was literally just about to hit the Publish button when Alisha rang. Caitlin has been violently sick, and brought her NG tube up with it. The doctors aren't going to put a new one in tonight, they'll do it tomorrow.


I'll update tomorrow as we'll know what happens next, but with sickness comes isolation, so it's a safe bet that she'll in barrier again.


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