I've been updating sporadically recently, mainly whenever we go to hospital or when something happens. I will update more frequently soon, I promise!
Due to the ridiculous weather we're having (a true British moan if I every saw one!) it's been hard to keep Caitlin cool, especially at night. Even with the fan on full blast she's still been really hot and it's been causing Caitlin's dressing over her Hickman Line to come away from her skin. Today it was virtually off on it's own! A quick trip to Ipswich Hospital to change the dressing and everything is back to normal. On Wednesday, Caitlin is due a blood sample and that will give us an indication of the next step. Hopefully we'll be back on track, albeit, two weeks behind but back to the schedule.
It is a busy time coming up and I'll scan the flow chart in this week so you can get an idea of what we have going on.
Until then.
xxx
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