We were back at Addenbrookes today for Caitlin's weekly review. One thing we were really concerned about was her breathing which sounds laboured, but they've checked her over & Caitlin was fine. It's the weight she's put on from the steroids & her little body is slowly catching up.
I'll be glad when we can start decreasing the dosage of the steroids. It's nice to see Caitlin eating & looking really healthy but at times she's eating because her body wants more, whether or not she actually wants it. She'll complain that her belly is sore from eating, but will still ask for a snack, satisfying the crave of the steroids. Unfortunately, I can only cook as fast as I can & most of the time it just isn't fast enough for Caitlin's stomach!
Everything else was routine today. Needles, blood, peg, antibiotics. Caitlin had a bit of a cry at the hospital but it didn't last long. I think the whole experience of it all is quite overwhelming at times for her & I don't blame her in the slightest for getting a bit upset. I don't think I'd have the resolve to go through with what Caitlin has to.
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