An early start for us all today as we had to be at Addenbrookes by 8.30. We managed it, just, thanks to Cambridge traffic. It's been procedure day today, which has meant Caitlin has had to be nil by mouth (didn't put that as the title, far too obvious. The one there is really, really clever!!) since last night. Again, having a starving hungry 4 year old isn't the easiest of things but we got through it.
They tested her bone marrow again today, along with antibiotics afterwards followed by the VCR for dessert. She's a tough little girl & has dealt with it well, until she nicked my packet of Smokey Bacon crisps, then she crossed a line!
We've been given the date of 10th of February for her Hickman Line. This is a tube that goes directly into one of her hearts valves so they can draw blood or administer drugs when they like rather than have to put a cannula into her already sore hands. This is great news but also one that does come with surgery for Caitlin to fit it, but I'll leave the ins & outs for another day.
One thing we have noticed is that Caitlin's hair is coming out. I'm trying not to draw attention to it too much as quite honestly, I don't want Caitlin to panic unnecessary. She knows it's going to happen but if we can play it down as much as we can it'll help calm her as & when it does. The last thing I want is Caitlin to stress, that's the parents job!
Her blood samples have revealed Caitlin has next to no neutrophils, which means she has an extremely low immune system so we have to be extra vigilant against illnesses. The slightest infection & Caitlin's chemo changes quite a bit.
That's all for tonight, I'm now going to kick Caitlin out of my bed & into hers.
XxX
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