Good Night, and Good Luck

Tomorrow is the start of Week 5. It's hard to believe that we started this journey (I was really hoping not to use that word, sounds like a bloody X-Factor audition!) 5 weeks ago, but here we are. Tomorrow is an important marker in Caitlin's recovery, with the results from her bone marrow and lumber puncture the doctors will be able to determine Minimal Residual Disease. Broken down, this means that they'll know whether the chemo is working as it should or whether they have to up the dosage and more her to Regimen B.


It also marks the start of a busy week (as if it hasn't been busy already!), Addenbrooke's first thing tomorrow for her bone marrow testing and lumber puncture. After that, we're off to Ipswich Hospital so they can give Caitlin her VCR. We start reducing the steroids on Saturday (YESSSSSSSSSSSSSSSSSSSSSSSSSSSSSS!) as well as administering some different drugs this week.


Back to Addy's on Tuesday for her review, Ipswich hospital on Thursday then to Cambridge to stay in a cheap hotel overnight for Friday's 7 o'clock start, and the fitting of her Hickman Line. Got it? Phew!


We had an unexpected couple of parcels when we got back on Tuesday from Cancer Research UK. Caitlin had been nominated (thank you Denise!!!) for a Little Star Award. She received a certificate, a t-shirt and silver Littlle Star award, a star key-ring and a £50 TK Maxx voucher! She was so proud, and Jessica even got an award for showing real courage after her sisters diagnosis. 

Little horrors!!


She also was given a beautiful quilt hand stitched by Love Quilts UK with different sections stitched by different people. The generosity displayed by people has been heartwarming and genuinely incredible. Thank you so much for all the support that has been shown to Caitlin. We appreciate it so much in what has been the hardest of times for all of us.


xxx