Just Go With It

We started the new block of chemo on Monday with the community nurses coming to ours and taking blood samples. Those results came back fine and we were given the go ahead to travel to Addenbrooke's the next day.


Tuesday was procedure day for Caitlin meaning she would have to be nil-by-mouth, so Alisha stopped Caitlin's feed at midnight so that there would be no problems. An early start for me and Caitlin beckoned as the traffic in Cambridge builds up quite early and we didn't want to be late. She was given her routine check up and everything was fine, except for a slight weight loss. Today Caitlin was due to have chemo in her bone marrow and via a lumber puncture, and after a little painting and playing with the toys at PDU, she had her special sleep and anaesthetic and the docs carried out the procedures.


She came back with a cannula in her hand and a slightly worrying explanation from the nurse as the Hickman Line hadn't bled back. She said it probably wasn't anything to worry about it, as it may have been the position Caitlin was in. Sure enough, when they changed the Hickman ends it worked fine. PHEW! The dietician also spoke to me about increasing her overnight feeds as her weight needs to come back up, but it wasn't at a worrying level.


Once the cannula was out, we headed home knowing we would be back the next day. Sure enough, the alarm clock going off early confirmed that. We left early again, as it wasn't due to be a long day at Addenbrooke's. When we arrived Caitlin was more concerned with playing with the Play-Doh that the Play Team Specialists had made than the chemo so we worked around her for a change! She had her Vincristine quickly and was set up with a pump for her IT MTX, it was only a small 50ml bag and it wouldn't take long at all. Caitlin was beeping before she even got to make the next Play-Doh animal! A quick flush of the lines, a quick change for Caitlin out of her pyjamas and into some clothes and a quick exit! We were home before lunch!


Tomorrow we are at Ipswich Hospital around lunch time so Caitlin can have her Peg. I'll update then.


xxx