Thursday we were due at Ipswich Hospital, for Caitlin's PEG. Apart from me feeling like absolute hell, it all went off without a hitch. After Caitlin has the injection we have to wait there for an hour after to make sure she doesn't have a reaction or suffer from any after effects from it.
Nothing much has changed really, Caitlin's nightmare's continue, usually starting at 11.30 and they do carry on sporadically through the nights after that. Her temper is back to usual, in that she's a typical stroppy 4 year old girl!!! I guess we can cut her a little slack on that, as long as she tidies up after herself after pulling all her toys out! Her appetite is still hit and miss, and that's quite hard to take as a parent. You want to see her eating, even if it is the occasional junk food meal or sweets. We have increased her feeds at night in accordance with her latest height and weight recordings, but we'd prefer not to have to depend on it as her main source of nutrients, especially as Daddy is the best cook ever!! (according to Caitlin)
Today we've had a small family birthday party as Caitlin and I will be at Addenbrooke's next Saturday for chemo. She's got to open loads of her presents and now has a lovely collection of My Little Pony's and a brand new scooter for when the weather is better. It's nice to see Caitlin, Jessica and her uncle Shea playing with toys and messing around, it always brings a smile to my face hearing her laugh. It's that giggle that never ends!!!
I'll see if I can get some pics off my dad and post them up, unless he does it first!
Update again soon.
xxx
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