Caitlin's Peg went well on Wednesday, apart from her screaming and crying before we'd even left the house. It's got to the point now where Caitlin knows what chemo is coming up and because that's the only injection she has to have, it's a massive no no in her books! As she was looking pale, the Oncology nurses decided to take another blood sample on Friday ahead of the weekend. A blood transfusion was looming and due, and we need to keep the counts topped up so she her body can help the chemo do what it's supposed to.
It was also Jessica's birthday on Wednesday so we managed to have chemo on both the girls birthdays in the end! On the Thursday, Alisha managed to dislocate her knee in the bathroom. A trip back up to the hospital for us, this time to A&E for Alisha. We were there a while and came out with a set of crutches and an appointment for the Fracture clinic on Friday. Thursday was also my Dad's birthday so we ended up in hospital for that one too.
Friday we went back to the Fracture clinic and we were there a little while, this time Alisha came out with crutches and a leg brace to keep her leg in one position while she's on crutches. That'll be on for at least four weeks with physiotherapy afterwards. After we finished in that part of the hospital, we walked to our usual section of it for Caitlin's blood samples. Everything went fine and we ventured home so the girls could rest up for their big night. Typically, we get a call later on, Caitin needs a blood transfusion, but luckily it's going to be Saturday morning so it doesn't clash with her treat!
Friday evening we had been invited to Colchester Zoo to take part in Dreamnight. Dreamnight is an opportunity for disabled children to walk round the zoo whilst its shut to the public, the Zoo workers are around the Zoo with small animals for the children to see and stroke and extra feeding times for the bigger animals. It was an amazing night for both girls, Caitlin who has been through so much in five months and for Jessica who had never been to the Zoo before. They got to stroke Ferrets, Tortoises, Rats, Donkeys, and fed the Giraffes and Elephants. They had a brilliant time and the Zoo really spoilt all the children rotten. It was also a very humbling experience as the majority of children were severely disabled, with tubes and wires over their bodies and pushchairs with monitors to make sure they're ok at all times. Yet, they were so happy to be there and to see the animals, it puts everything into perspective. Knowing what we've been through and thinking we've had it bad, and then seeing the children whose quality of life must be awful, for them and their parents. It just fuels me even more to raise money for these charities, as their continual hard work is astounding and offers children like Caitlin and the children we've met a chance at normality, in such dark times.
It's Saturday as I write this, we've had little to no sleep as Jessica had a rough night, Caitlin and Alisha are up the hospital for a blood transfusion, which will take 4 hours. Jessica is with me, currently asleep. We've got a double helping of Addenbrooke's at the end of the week with a lumber puncture on Thursday, and Vinc and Cytrabines on Friday. I'll leave you with our week in pictures.
Update again soon. xxx
Its good to see them enjoying themselves lots of love Auntie Jean xxxx
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